Well, the zoo last sunday went fine.
Nov. 23rd, 2008 02:58 amHad a bad cluster there, not really abnormal.
Blood tests came back normal. Except for Lupus. That was, of course, inconclusive. They're not sure why the fuck my blood isn't clotting properly.
Friday I saw Allergy, my doctor is gonnnee. ;_; Well, my favorite one. So no nice tricks up his sleeve to help.
Monday I see neurology.
For some utterly insane reason I'm going to allow them to shove a needle in the back of my head and inject drugs around my occipital nerve. Not pleasant, but it's supposed to make my head go numb during clusters. The only reason they didn't do it before was because the occipital nerve wasn't bothering me.
Now when a hit starts, it feels like there's a snake, embedded in my skin where that nerve is. I can't touch it to see wtf it's doing because doing so causes godawful pain.
Mom intends to demand MRI's and a full neurological evaluation because during the worst clusters my motor skills go awry. This isn't supposed to happen, but god only knows what the fuck my brain is doing when this is going on.
I'm worn out pretty bad most of the time. Not sure if that's the zanaflex or if something else is going on.
Blood tests came back normal. Except for Lupus. That was, of course, inconclusive. They're not sure why the fuck my blood isn't clotting properly.
Friday I saw Allergy, my doctor is gonnnee. ;_; Well, my favorite one. So no nice tricks up his sleeve to help.
Monday I see neurology.
For some utterly insane reason I'm going to allow them to shove a needle in the back of my head and inject drugs around my occipital nerve. Not pleasant, but it's supposed to make my head go numb during clusters. The only reason they didn't do it before was because the occipital nerve wasn't bothering me.
Now when a hit starts, it feels like there's a snake, embedded in my skin where that nerve is. I can't touch it to see wtf it's doing because doing so causes godawful pain.
Mom intends to demand MRI's and a full neurological evaluation because during the worst clusters my motor skills go awry. This isn't supposed to happen, but god only knows what the fuck my brain is doing when this is going on.
I'm worn out pretty bad most of the time. Not sure if that's the zanaflex or if something else is going on.